What about People fully healthy and young crashing after vaccination with various autoimmunity?
I am not speaking only of Covid vaccines, but other too.
I know it is predisposition etc, but those People did have flu without crashing and then crash from vaccine.
I am a statistical analyst and i realise all the weakness of prsenting individual cases, however, the link is there, the vaccine is addiitional risk.
Having had 10-20 flus in my life and only very minor flare from one , very minor, i am skeptical.
I dont have Lupus though, i have Sjogrens.
I dont have immune deficiencies.
My Sjogrens disease caused 15-20 years before onset of sicca and rheuma, severe neurological and psychiatric involvement that wasnt recognised.
Took over 200 doctors and nobody even szggested anything Like that.
I self diagnosed.
Unfortunately i was late to finally get IVIG for severe Neuropathy POTS and encephalopathy, causing very bizare neuropsychiatric symptoms but Also severe POTS.
i responded to IVIG amazingly well but after years of begging for help.
Unfortunately too late as 40 days later my Sjogrens exploded and i developed Rapid onset sicca. Very severe. And rheuma.
Sam battling now all 4 neuropathy,psyche and sicca and rheuma.
Drugs not available and IVIG not given in Europe although IT helps tremendoudly.
The doctors play its not all from Sjogrens even though its literally hard to find Sjogrens patient without neuropathy.
My question to you Dr, although not lupus related i am at increased risk for that too, what do you find helping Sjogrens sicca? Research is do confusing because no drug that Works for lupus Works for sicca.
It is very disturbing symptom if not mild and underappreciated.
My rheumaatologist Said its not impscting my life quality, without asking me is it impscting my life quality. It absolutely does enormously. I am early 30 yr old with rapidly developed sexual dysfunction. How Will my glands look in 20 years of i dont stop disease?
Aldo mobility impaired because neuropathy.
Seems Like only IVIG Works for Sjogrens, sometimes.
Do you have any opinion why is Sjogrens most hard to treat rheumatic disease?
As per studies, not myself suggesting this. I barely ever Meet anyone ever reaching remission from Sjogrens.
While i met thousands in remission from lupus scleroderma and RA
Thanks
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