Research Results in Dealing with Autoimmune Disease Fatigue Now
posted in Symptoms In Lupus on December 25, 2020 by
The causes of fatigue and dealing with autoimmune disease fatigue.
Tips on how to improve energy with Sjogren’s, lupus, and related disorders
Thank you to the Sjogren’s Foundation for producing this video as a part of their “Town Hall” series during the COVID-19 pandemic of 2020.Although this was directed towards people who have the autoimmune disorders, Sjogren’s, it also pertains to other autoimmune disorders, such as lupus, rheumatoid arthritis, scleroderma, polymyositis, and dermatomyositis.Some facts about fatigue in lupus and other autoimmune diseases:
- It is one of the most common problems
- It is one of the most difficult symptoms to treat
- Hydroxychloroquine and belimumab (Benlysta) can help some systemic lupus erythematosus (SLE) patients with fatigue that is due to active inflammatory disease
- SLE patients with high anti-dsDNA, low C3, low C4, or high EC4d who have fatigue may improve with belimumab
- Surprisingly, the one treatment found to benefit more patients with autoimmune diseases than any other treatment is exercise!
- If you get less than 8 hours of good quality sleep each night, it is imperative to work on getting enough sleep. Taking a course in CBT-I is one of the best ways to learn to sleep well
Go to the Sjogren’s Foundation’s Town Hall series for more informative videosIf you have Sjogren’s, become a member of the Foundation. You get so much out of being a member to include an educational magazine every few months with great articles on how to deal with the complications of Sjogren’s, such as fatigue, pain, memory problems, sleep problems, the dryness, etc. They also share with their members the latest in research.
Also, get a copy of my in depth talk about autoimmune disease fatigue from the Sjogren’s Foundation on their website: https://www.sjogrens.org/shop/2019-cd-fatigue-and-sjogrens-by-donald-e-thomas-jr-md
For more in-depth information on increasing energy when you have lupus:
Read chapters 6, 38, and 39 of The Lupus Encyclopedia, edition 2
Look up your symptoms, conditions, and medications in the Index of The Lupus Encyclopedia
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If you have fatigue and energy loss from lupus, what has your experience been? What do you recommend for other patients?
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Author
Don Thomas, MD, author of “The Lupus Encyclopedia” and “The Lupus Secrets“
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